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Accessible Enjoyment: How to Create Joy Everyday (Bad Days Included)
Disability and fun can seem incompatible. How can you have fun when you are stuck in bed all day (and not in a good way)? What ways are there to laugh and smile when you are preoccupied with pacing, worrying about benefits, dealing with all the well-intended recommendations to drink more water/eat healthily/try chia seeds and oh yes, the actual chronic illness you are living with every single day? It’s hard, I know. I really do know as I’ve lived with chronic illness for the last thirteen years. But I’ve also danced in firelight on the beach at sunset, shared my heart on stage with hundreds of people, groomed the horses in milky December light,…
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A Love Letter to Your Healing Heart
This is a love letter from my healing heart to yours. Paper hearts and rose maroc, old stories and tears, shared along with heart-scars over cups of tea, it’s all here. We are, facing each other across the internet, from my screen to yours, be my virtual valentine? I have something very special to share with you… A Love Letter to Your Healing Self. You are brilliant. You don’t have to look the part, or feel it. You won’t reach a time in your life when your day to day reflects what you read online or what you imagine your idols’ lives look like. The beauty you see is…
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Dark Times, Towards the Light: A Healing Journey Update
I was discharged from hospital on Thursday, and am so happy to be home. I am okay. I had “not-a-stroke,” but we aren’t entirely sure what it is. I was admitted on Wednesday afternoon, because my right side suddenly went numb and felt like it had collapsed. I had weakness, loss of sensation and numbness in my right side from head to foot. I still have these symptoms, but they’re better than they were. I’ve had All Of The Tests from heart trace to CT scan, everything is clear so that’s good news. The doctors think perhaps it’s related to my pre-existing conditions. I’m home and safe and in the best position to…
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Immune Suppression and Winter Loneliness
We had the first proper frost here yesterday. The grass was crunchy underfoot (and wheelchair wheels), the air was bitingly cold. My yoga trousers did not provide enough protection and Linus dashed back into the house to grab my fleece lined leggings (yes, they exist, yes, they are awesome). There are lots of wonderful things about winter but it can be very isolating. In winter it’s easier to get lonely, especially if you have a chronic illness or need to stay at home for any reason (caring for small children/an adult, working from home, living in an isolated area, etc.). I’ve just had a viral infection, and last winter I had chest…
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Non-Hippy Happy: Building the Happiness Habit
Firstly, full disclosure, I am pretty hippy. Not in a tie-dyed, groovy maaaan, recreational drugs, ‘drop in any time it’s an open house’ way. Not at all. I can’t stand tie-dye. I certainly don’t speak like that. I’m as square about drugs as its possible to be without actually being law enforcement personnel and if you try and come to my house without an invitation I won’t answer the door. I like block colours, received pronunciation, virgin drinks, appointments, and actually being dressed when you arrive. But in terms of happiness, wellness and emotional health – I’m a meditating, affirmation reciting, mantra chanting, mandala wearing, yoga class attending, flower-crown loving and therapy advocating hippy. But I was…
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