• EmBodying Freedom With Chronic Illness

    I have stood before a crowd and spoken my story into each waiting, listening heart. I have lain on my belly, on a sun warmed blanket, playing scrabble in an ancient woodland, sunlight dappling my face….with blockaded diggers roaring just ahead. I’ve been the headline story on the 10 o’clock news. I’ve been stood up, forced down and vilified and sanctified. I’ve been held down, tied up and trapped – in a tiny cell, and within my own body. Now, I’m fighting to free myself. When I first began this journey, I was just 18. Sunburned, laughing, carefree…and then, suddenly, my body stopped working as it always had. Everything fell…

  • Being Type “A” With Chronic Illness: Slowing Down to Survive

    I was never one of those girls who had a racy life pre-diagnosis. Nope. It was utterly, boringly free of sex, drugs…even rock ‘n’ roll. I listened to punk, actually, ate vegetarian (then vegan) organic food, and spent my time climbing mountains, swimming, and working to rescue animals. All very worthy, so what went wrong? Some days I wake and feel pellucid, like I’m held together not with bones, but with vibrating golden wires. Transcendental! Then, there are other days when just breathing is an effort. Everything moves painfully. Slowly. When living with illnesses that include chronic fatigue, when you are literally forced to slow down, how do you manage…