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In Defense of Doing Nothing
I feel it too, the passing of time. The frustration of physical limits. Mounting achievements by your friends and loved ones, when simply getting out of bed feels like climbing a mountain to you. I know you want all those good things – love, joy, fulfilment, achievement and that’s why on any good day, in any space, reprieve or opportunity you get, you launch. It feels like you haven’t got the luxury of slow-and-steady so you run at life in any moment you can, pushing, pushing, pushing to achieve those long held goals. Doing is an addiction. (Click to Tweet!) When we are doing we feel momentum, we feel like…
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Accessible Enjoyment: How to Create Joy Everyday (Bad Days Included)
Disability and fun can seem incompatible. How can you have fun when you are stuck in bed all day (and not in a good way)? What ways are there to laugh and smile when you are preoccupied with pacing, worrying about benefits, dealing with all the well-intended recommendations to drink more water/eat healthily/try chia seeds and oh yes, the actual chronic illness you are living with every single day? It’s hard, I know. I really do know as I’ve lived with chronic illness for the last thirteen years. But I’ve also danced in firelight on the beach at sunset, shared my heart on stage with hundreds of people, groomed the horses in milky December light,…
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A Love Letter to Your Healing Heart
This is a love letter from my healing heart to yours. Paper hearts and rose maroc, old stories and tears, shared along with heart-scars over cups of tea, it’s all here. We are, facing each other across the internet, from my screen to yours, be my virtual valentine? I have something very special to share with you… A Love Letter to Your Healing Self. You are brilliant. You don’t have to look the part, or feel it. You won’t reach a time in your life when your day to day reflects what you read online or what you imagine your idols’ lives look like. The beauty you see is…
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Illness Etiquette: What People CAN Say…
In many illness support groups everyone talks of all the silly things people say to those with illness and disability… :: Will you ever walk again? (Hi, I don’t believe we’ve been introduced, I’m Grace, how do you do?) :: Isn’t it funny. So funny, bodies, aren’t they? (Not wildly, no) :: I wonder when they will find a cure? (I’ve no idea, and in the mean time please don’t report to me what you read in some random health bulletin, it’s not helpful and it’s boring) :: Aren’t you brave? (No. Fighter pilots, yes. Firefighters, yes. Mahatma Ghandi, yes. Me, no) :: What did you do to yourself then? (Would you believe me if I told you…
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