• In Defense of Doing Nothing

    I feel it too, the passing of time. The frustration of physical limits. Mounting achievements by your friends and loved ones, when simply getting out of bed feels like climbing a mountain to you. I know you want all those good things – love, joy, fulfilment, achievement and that’s why on any good day, in any space, reprieve or opportunity you get, you launch. It feels like you haven’t got the luxury of slow-and-steady so you run at life in any moment you can, pushing, pushing, pushing to achieve those long held goals. Doing is an addiction. (Click to Tweet!) When we are doing we feel momentum, we feel like…

  • Accessible Enjoyment: How to Create Joy Everyday (Bad Days Included)

    Disability and fun can seem incompatible. How can you have fun when you are stuck in bed all day (and not in a good way)? What ways are there to laugh and smile when you are preoccupied with pacing, worrying about benefits, dealing with all the well-intended recommendations to drink more water/eat healthily/try chia seeds and oh yes, the actual chronic illness you are living with every single day? It’s hard, I know. I really do know as I’ve lived with chronic illness for the last thirteen years. But I’ve also danced in firelight on the beach at sunset, shared my heart on stage with hundreds of people, groomed the horses in milky December light,…

  • Illness Etiquette: What People CAN Say…

    In many illness support groups everyone talks of all the silly things people say to those with illness and disability… :: Will you ever walk again? (Hi, I don’t believe we’ve been introduced, I’m Grace, how do you do?) :: Isn’t it funny. So funny, bodies, aren’t they? (Not wildly, no) :: I wonder when they will find a cure? (I’ve no idea, and in the mean time please don’t report to me what you read in some random health bulletin, it’s not helpful and it’s boring) :: Aren’t you brave? (No. Fighter pilots, yes. Firefighters, yes. Mahatma Ghandi, yes. Me, no) :: What did you do to yourself then? (Would you believe me if I told you…

  • Dark Times, Towards the Light: A Healing Journey Update

    I was discharged from hospital on Thursday, and am so happy to be home. I am okay. I had “not-a-stroke,” but we aren’t entirely sure what it is. I was admitted on Wednesday afternoon, because my right side suddenly went numb and felt like it had collapsed. I had weakness, loss of sensation and numbness in my right side from head to foot. I still have these symptoms, but they’re better than they were. I’ve had All Of The Tests from heart trace to CT scan, everything is clear so that’s good news. The doctors think perhaps it’s related to my pre-existing conditions. I’m home and safe and in the best position to…

  • Dear Grace Q & A: 7 Steps To Your Business Comeback After Chronic Illness

    How do you move forward when you’ve had to take a break from business because of illness? I’m so happy to answer this! Let’s break it down, shall we? 1. Listen to what’s underlying. Ask yourself questions to really dig into how you’re feeling and what your greatest fears are. Are you worried people have forgotten you? Think you are unreliable, unprofessional? Do you feel guilty about needing a break in the first place? Where is your fear coming from? Whose voice is it? When you pinpoint your underlying worries, it’s far easier to acknowledge them and then, take the actions necessary to alleviate them. 2. “Turn your setback into…