• TEDx Here I Come

    Although I’d wanted to be a TEDx speaker for a long timer – after all, the TED stage is legendary – the experience is quite different to what I’d imagined. If you are wondering what it’s like to be a TEDx speaker, or how to manage a big event when living with chronic illness and life challenges, then I’m here for you. I’m sharing my experience in the hope that it’s useful – which in many ways, is what speaking is all about. TEDx begins with an idea worth spreading. Once you find your idea worth spreading, it needs to be summed up in one sentence. If you can’t do…

  • My Top Ten Most Comforting Books

    When you need some comfort, if you are having a difficult day or you just want something lovely to occupy you – dig into this list and don’t forget to comment to share your favourite comfort books/films/actions. 1. The Harry Potter Series  Because what part of becoming a wizard, and overcoming evil with the help of your friends isn’t heart-warming?   2. Miss Pettigrew Lives For a Day It’s the ultimate Cinderella story, and it is unmissable.   3. Cold Comfort Farm Flora Poste “of every art and grace save that of earning her own living,” travels to the farm of her relatives, and finding it devoid of both common…

  • In Defense of Doing Nothing

    I feel it too, the passing of time. The frustration of physical limits. Mounting achievements by your friends and loved ones, when simply getting out of bed feels like climbing a mountain to you. I know you want all those good things – love, joy, fulfilment, achievement and that’s why on any good day, in any space, reprieve or opportunity you get, you launch. It feels like you haven’t got the luxury of slow-and-steady so you run at life in any moment you can, pushing, pushing, pushing to achieve those long held goals. Doing is an addiction. (Click to Tweet!) When we are doing we feel momentum, we feel like…

  • Accessible Enjoyment: How to Create Joy Everyday (Bad Days Included)

    Disability and fun can seem incompatible. How can you have fun when you are stuck in bed all day (and not in a good way)? What ways are there to laugh and smile when you are preoccupied with pacing, worrying about benefits, dealing with all the well-intended recommendations to drink more water/eat healthily/try chia seeds and oh yes, the actual chronic illness you are living with every single day? It’s hard, I know. I really do know as I’ve lived with chronic illness for the last thirteen years. But I’ve also danced in firelight on the beach at sunset, shared my heart on stage with hundreds of people, groomed the horses in milky December light,…

  • Let’s Talk About Self-Worth

    Maybe you aren’t a size 6. Maybe you can’t do downward dog. Maybe you aren’t exactly setting the world alight. Maybe you don’t know who you are, or what your passion is. Maybe brushing your teeth feels like a huge task. Maybe you aren’t earning 6 or 7 or 8 figures like a #boss Maybe your blog isn’t the talk of the town. I don’t care. You, my dearest, are worth everything, everything. Let’s talk about self-worth… Self worth is respecting my right to be a human being not a human doing. It means, I get space on this planet simply by being here, and I don’t need to rush/prove/busy myself…

  • He Liked It so He Put a Mitten on It

    If you a get an email from me this week, it will probably be short, there may very well be typos, and capital letters? Forget it, that’s way beyond me at the moment. Why? Because I have a new friend/enemy – the computer mitten. You want to know the story? Here we go…Since I first became ill, I’ve had issues with my right side. It always hurt more and it didn’t feel as strong. Both my arm and leg, it was all on the right side. But when I found a new massage therapist recently, her work astounded me. After a massage I had so much more movement and less…

  • Ferguson, The Middle East, Terror and War: How To Cope In Times of Fear

    The world can be a scary place. All around us – on the news, billboards, Twitter, the internet, our inboxes, on the lips of neighbours. As our global village gets smaller and our means of interacting with others grows more bountiful, so too do the often frightening realities of others become larger. More vivid. Graphic. Overwhelming. Scary. And though observing isn’t as difficult as actually living in a war zone, surviving an unfathomable social injustice or experiencing a violent incident, it can trigger anxiety, stress or even depression. When we lose touch with our own reality and self with each manifestation of upset and fear, the effect on our lives can…

  • How I Manage Business, Wellness and Life

    As a wellness provocateur and disabled entrepreneur I’m often asked about how I manage business, wellness and life. I am sharing my answer here (with permission from the person who asked). Q: When personal matters grow overwhelming, how do you refocus so that you can effectively run your businesses? This has been on my mind lately; I have more clients right now than ever, which is exciting, but I’m also feeling my symptoms worsen. And I’m not in crisis mode, either, so am not sure of how to proceed.  A: It’s challenging that more clients can come, but bring more pressure too. It’s not often talked about, but it’s totally a…

  • Living Well With Fatigue

    Do you consistently have enough energy? No? You aren’t alone. And while this isn’t a bulleted, 10-point-quick-fix article full of ginseng and grandiose promises, it is one neatly packed with valuable concepts to add some pep to your step. These thoughtful approaches have helped me live well, with fatigue and chronic illness for over 10 years, while earning a degree and building two thriving businesses. Living with illness that features symptomatic fatigue often leaves me too exhausted to sit up or turn over in bed. That same exhaustion may also have me regard basic tasks with a humdrum eye, “I don’t feel up to doing that right now…maybe I’ll try later…

  • Relaxation Rehabilitation Part Four: How to Rest and Make it Fun

    Lying down and doing nothing can be what is needed but sometimes our brains feel like they are racing and we need a gentle activity. Here are some suggestions: 1. Sanctuary. Imagine an inner safe place where you can go and feel calm, go there now. 2. Senses. Use relaxing sensory experiences. What is relaxation to you? What invokes relaxation and the sensation of ease? It could be falling asleep,the knowledge of nothing to do, a massage, a hug, a warm bath, the smell of clean linen, candle light, the sea and the beach. whatever it is for you, create or invoke it to relax today. Use smell, taste, colour and imagery.…

Accessibility