• What to Wear All Day Instead of Pyjamas

    I know that as ‘an entrepreneur’ I should probably give you the impression that, although I work from home, each day I get up practice yoga, curate a comfortable yet funky outfit, and do my hair and makeup before sitting down to begin my work. But that is not at all true, not even a little bit. I’m not just an entrepreneur, I’m also living with energy constraints. And I’ve been living with chronic health challenges for 13 years. Here’s the truth: many of those years were spent in pyjamas. I’ve had satin pyjamas to prevent bedsores and french linen pyjamas to keep me cool (but they just get soaked…

  • He Liked It so He Put a Mitten on It

    If you a get an email from me this week, it will probably be short, there may very well be typos, and capital letters? Forget it, that’s way beyond me at the moment. Why? Because I have a new friend/enemy – the computer mitten. You want to know the story? Here we go…Since I first became ill, I’ve had issues with my right side. It always hurt more and it didn’t feel as strong. Both my arm and leg, it was all on the right side. But when I found a new massage therapist recently, her work astounded me. After a massage I had so much more movement and less…

  • How I Manage Business, Wellness and Life

    As a wellness provocateur and disabled entrepreneur I’m often asked about how I manage business, wellness and life. I am sharing my answer here (with permission from the person who asked). Q: When personal matters grow overwhelming, how do you refocus so that you can effectively run your businesses? This has been on my mind lately; I have more clients right now than ever, which is exciting, but I’m also feeling my symptoms worsen. And I’m not in crisis mode, either, so am not sure of how to proceed.  A: It’s challenging that more clients can come, but bring more pressure too. It’s not often talked about, but it’s totally a…

  • Wellness in Dark Weather: Grace’s Winter Love List

    I love our earth, I love the cycles and seasons. But for a while now, I’ve been nervous about the coming winter. Last winter I had two pretty severe lung infections and since then I’ve been nervous about winter, infections, feeling like I can’t breathe and having that awful chest pain. The amount of anxiety is disproportionate to the risk of infection, but every time I thought about winter and endless drizzly grey skies I felt tension. So we decided to re-frame things, and all summer Linus has been helping me put together a Winter Love List. A list of specifically enjoyable activities for cold or wet weather. Some of…

  • Diagnosis: A New View

    It is the moment which changes your life. Sometimes it feels like it is the moment which ends it. The life you knew is gone, you are AD – After Diagnosis, your own new millennium. Diagnosis can feel like your carefully planned and treasured life burning up around you. That you can see things changing, feel them shifting, but are helpless to stop it. Diagnosis feels like a fire moving through our lives, consuming all we hold dear, burning our very selves, our image, who we are, and leaving us with little but pain and ash – where there used to be hopes, plans and a maybe not perfect, but…