• Using Your “Brokenness” to Break Boundaries

    Experiencing pain, grief, trauma and seemingly insurmountable challenges are inevitable to the human condition. But what if “being broken” – a “misfit” – serves as a catalyst for liberation and greater purpose? (Click to Tweet!) As a trailblazing wellness pioneer I explore my own life-changing physical illness… and share the story of a dramatic shift in thinking that incited a destiny I never could have imagined. Please watch, and share with all those feeling broken and stuck, with the outsiders who want to shift into trail blazers.   Tweetables Using your “brokenness” to break boundaries #TEDx http://bit.ly/1MblhwN Living day to day as yourself, and loving yourself exactly as you are, is…

  • Disability Creativity: Co-opting Clothing for Accessibility Part 2

    Living with disability can ignite creativity – at least it has for me in terms of my wardrobe. Check out Disability Creativity: Co-opting Clothing for Accessibility Part 1 – Outerwear here. Companies design clothes for people with disabilities, however, most of those clothes are what I imagine the companies think ‘elderly’ people will wear. But I’m sure most of us will value style and self expression, as well as comfort, at every age. (Click to Tweet!) Clothes that work for your body and life can be challenging to find. Maybe you need Velcro, not buttons, or perhaps things that are easy to pull on and off, or don’t get caught…

  • Disability Creativity: Co-opting Clothing for Accessibility

    Peek inside my wardrobe and you’ll see the evidence of a life spent in pursuit of adventure. From wetsuits and jodhpurs to ski wear and jewel-bright dresses. But the mix is misleading – they’re all ideas I’ve borrowed from other disciplines to make living with disability and dressing for wheelchair use easier. What’s neoprene got to do with life on wheels? Read on… I’ve lived with disability for 13 years and learned to get creative. Disability doesn’t have to mean dismal dressing. (Click to Tweet!) I’ve yet to find disability clothing brands that suit my sense of style, so instead I’ve co-opted clothes from other areas that work for wheelchairs…

  • My Top Ten Most Comforting Books

    When you need some comfort, if you are having a difficult day or you just want something lovely to occupy you – dig into this list and don’t forget to comment to share your favourite comfort books/films/actions. 1. The Harry Potter Series  Because what part of becoming a wizard, and overcoming evil with the help of your friends isn’t heart-warming?   2. Miss Pettigrew Lives For a Day It’s the ultimate Cinderella story, and it is unmissable.   3. Cold Comfort Farm Flora Poste “of every art and grace save that of earning her own living,” travels to the farm of her relatives, and finding it devoid of both common…

  • On Usefulness: Underneath It All, We Want to Be of Worth

    What’s it worth? It’s a common question, perhaps a common-place one. We ask what a potential purchase is worth, what an object of perceived value is worth, and if we are ill then we often ask what an event is worth in terms of the time and energy we will spend there. It’s a fair question: is it good enough to justify what I am giving? Does it have a value equal to that which you gave? But when did we begin asking what humans were worth? I mean, darling just look at you… You are worth everything. EVERYTHING. (Click to Tweet!) The problem as I see it, is this:…

  • He Liked It so He Put a Mitten on It

    If you a get an email from me this week, it will probably be short, there may very well be typos, and capital letters? Forget it, that’s way beyond me at the moment. Why? Because I have a new friend/enemy – the computer mitten. You want to know the story? Here we go…Since I first became ill, I’ve had issues with my right side. It always hurt more and it didn’t feel as strong. Both my arm and leg, it was all on the right side. But when I found a new massage therapist recently, her work astounded me. After a massage I had so much more movement and less…

  • Road Trips and Self Care

    A car is, to me, an incredibly luxurious mode of transport. We can go whenever we like! It’s a private pod that can be made comfortable and it’s something that needs to be considered seriously, bearing in mind the impact journeys have on climate change. A road trip can be fabulous, and difficult too. Travelling is tiring, something that seems to be forgotten nowadays. As though if one is sitting down then one is at ease. Not so! As a child, my family always treated travelling or spending time in the cities as an exertion. One had to rest after travelling home from London by train. Linus, my husband, was…

  • Beyond Good and Bad

    I don’t know about you, but as much as I appreciate and value people I know, choose and trust offering me refinement, celebration, feedback, reflection advice and wisdom… I don’t much like people telling me what I can and can’t do. Especially as most of it turns out not to be true. I’ve turned Trail Blazer, remember? I mean if I’d listened to all the people who told me I couldn’t do something, I certainly wouldn’t be here writing to you today. And so I don’t really like categorizing my life into ‘that’s not for me’. Of course there are things I have no desire to pursue – recreational drugs,…

  • Relaxation Rehabilitation Part Four: How to Rest and Make it Fun

    Lying down and doing nothing can be what is needed but sometimes our brains feel like they are racing and we need a gentle activity. Here are some suggestions: 1. Sanctuary. Imagine an inner safe place where you can go and feel calm, go there now. 2. Senses. Use relaxing sensory experiences. What is relaxation to you? What invokes relaxation and the sensation of ease? It could be falling asleep,the knowledge of nothing to do, a massage, a hug, a warm bath, the smell of clean linen, candle light, the sea and the beach. whatever it is for you, create or invoke it to relax today. Use smell, taste, colour and imagery.…

  • Relaxation Rehabilitation Part Three: Solutions for Resting Problems

    * When you struggle to switch your mind off try using mindfulness techniques. Observe the thoughts, the desires, the intense need to sit up and write something down or just look at that. Watch the flood of emotions, guilt, frustration, fear, unworthiness all come up and pass away. Let it all happen. It’s not you, you are the space in between the thoughts. * When you stick with it, the thoughts and tension begin to ease. At the beginning it can be very painful as the secondary tension related pain in the muscles releases. This passes and blood flows more easily. Remember in this difficult moment, you are helping your…

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