• Accessible Enjoyment: How to Create Joy Everyday (Bad Days Included)

    Disability and fun can seem incompatible. How can you have fun when you are stuck in bed all day (and not in a good way)? What ways are there to laugh and smile when you are preoccupied with pacing, worrying about benefits, dealing with all the well-intended recommendations to drink more water/eat healthily/try chia seeds and oh yes, the actual chronic illness you are living with every single day? It’s hard, I know. I really do know as I’ve lived with chronic illness for the last thirteen years. But I’ve also danced in firelight on the beach at sunset, shared my heart on stage with hundreds of people, groomed the horses in milky December light,…

  • A Love Letter to Your Healing Heart

    This is a love letter from my healing heart to yours. Paper hearts and rose maroc, old stories and tears, shared along with heart-scars over cups of tea, it’s all here. We are, facing each other across the internet, from my screen to yours, be my virtual valentine? I have something very special to share with you… A Love Letter to Your Healing Self.   You are brilliant. You don’t have to look the part, or feel it. You won’t reach a time in your life when your day to day reflects what you read online or what you imagine your idols’ lives look like. The beauty you see is…

  • Do You Want to Help Heal a Heart?

    I remember receiving my first diagnosis. I never imagined then, at 18, that there would be a time when I would look back at just one diagnosis in rose-tinted nostalgia. Perhaps it’s better that way, I have a laundry list of diagnoses now, but none of the labels constrain me. The disabilities are just the footnotes, I am the adventure story. But I’m getting ahead of myself, that’s not where I began. In the sterile office, with fading winter light slanting in through the blinds, and the grey institutional carpet under my red ballet shoes, I heard the doctor say those words ‘no cure’. I took the wound to my…

  • Dear Grace Q & A: Building a Life with Disability

    Question: “What can people do, who don’t feel they can start their own business or aren’t able to work in their circumstances? What kind of projects could they get involved with? What kind of things can they build their life around, if they currently lack focus? What kinds of hobbies can ill and disabled people take up?” Answer: The real answer, of course, is to find your passion and then make it accessible. Just as you’d build a life without a disability. What do you want to do? What do you love? If you don’t know what you love, can you explore? But I do have a list of accessible options and…

  • New Year, Your Way

    It’s a new year and everyone is making huge plans. There’s a new start, clean slate and another chance to get it right. What pressure! Social pressure encourages us to make big plans, live your biggest life, change the world, lean in, make it count. It can seem like everyone is planning amazing goals, but what if that’s not possible for you? I believe that we need kindness more than admonishment and pressure. (Click to Tweet!) Lasting, healing change happens organically to the schedule of your body, not when an artificially constructed calendar turns over. I’m refusing to pressure myself just because of a calendar invented hundreds of years ago…

  • Dark Times, Towards the Light: A Healing Journey Update

    I was discharged from hospital on Thursday, and am so happy to be home. I am okay. I had “not-a-stroke,” but we aren’t entirely sure what it is. I was admitted on Wednesday afternoon, because my right side suddenly went numb and felt like it had collapsed. I had weakness, loss of sensation and numbness in my right side from head to foot. I still have these symptoms, but they’re better than they were. I’ve had All Of The Tests from heart trace to CT scan, everything is clear so that’s good news. The doctors think perhaps it’s related to my pre-existing conditions. I’m home and safe and in the best position to…

  • Dear Grace Q & A: 7 Steps To Your Business Comeback After Chronic Illness

    How do you move forward when you’ve had to take a break from business because of illness? I’m so happy to answer this! Let’s break it down, shall we? 1. Listen to what’s underlying. Ask yourself questions to really dig into how you’re feeling and what your greatest fears are. Are you worried people have forgotten you? Think you are unreliable, unprofessional? Do you feel guilty about needing a break in the first place? Where is your fear coming from? Whose voice is it? When you pinpoint your underlying worries, it’s far easier to acknowledge them and then, take the actions necessary to alleviate them. 2. “Turn your setback into…

  • Non-Hippy Happy: Building the Happiness Habit

    Firstly, full disclosure, I am pretty hippy. Not in a tie-dyed, groovy maaaan, recreational drugs, ‘drop in any time it’s an open house’ way. Not at all. I can’t stand tie-dye. I certainly don’t speak like that. I’m as square about drugs as its possible to be without actually being law enforcement personnel and if you try and come to my house without an invitation I won’t answer the door. I like block colours, received pronunciation, virgin drinks, appointments, and actually being dressed when you arrive. But in terms of happiness, wellness and emotional health – I’m a meditating, affirmation reciting, mantra chanting, mandala wearing, yoga class attending, flower-crown loving and therapy advocating hippy. But I was…

  • On Usefulness: Underneath It All, We Want to Be of Worth

    What’s it worth? It’s a common question, perhaps a common-place one. We ask what a potential purchase is worth, what an object of perceived value is worth, and if we are ill then we often ask what an event is worth in terms of the time and energy we will spend there. It’s a fair question: is it good enough to justify what I am giving? Does it have a value equal to that which you gave? But when did we begin asking what humans were worth? I mean, darling just look at you… You are worth everything. EVERYTHING. (Click to Tweet!) The problem as I see it, is this:…

  • Space to Grow…into JOY

    A few weeks ago a repairman stood in our drawing room, looked around and asked, “So, my love, when are you moving in?” I was shocked. We’ve lived here nearly 7 years. Looking back, I can see why he was confused. The floor was covered in cardboard boxes full of things to donate, sell or recycle. All our paintings were down from the walls, and we’d removed nearly all the furniture. All that remained was a table, two chairs, and an earthenware jug of sunflowers on the chimney piece. I loved it. A blank slate, a clear space to grow into. The story behind all this, of course, is much…

Accessibility