• Illness Etiquette: What People CAN Say…

    In many illness support groups everyone talks of all the silly things people say to those with illness and disability… :: Will you ever walk again? (Hi, I don’t believe we’ve been introduced, I’m Grace, how do you do?) :: Isn’t it funny. So funny, bodies, aren’t they? (Not wildly, no) :: I wonder when they will find a cure? (I’ve no idea, and in the mean time please don’t report to me what you read in some random health bulletin, it’s not helpful and it’s boring) :: Aren’t you brave? (No. Fighter pilots, yes. Firefighters, yes. Mahatma Ghandi, yes. Me, no) :: What did you do to yourself then? (Would you believe me if I told you…

  • Dear Grace Q & A: Building a Life with Disability

    Question: “What can people do, who don’t feel they can start their own business or aren’t able to work in their circumstances? What kind of projects could they get involved with? What kind of things can they build their life around, if they currently lack focus? What kinds of hobbies can ill and disabled people take up?” Answer: The real answer, of course, is to find your passion and then make it accessible. Just as you’d build a life without a disability. What do you want to do? What do you love? If you don’t know what you love, can you explore? But I do have a list of accessible options and…

  • Bed-bound to Business Bombshell

    I was 21, two weeks a bride and desperately, dangerously sick. Bed bound and hurting, letters became my link to the outside world. Until you are sick and imprisoned in your own home, in your own body, it is hard to understand exactly how important post/mail is. I lived for letters; that contact with the outside I could only just remember, something to focus on and hope for. We made up Healing Boxes – gifts of information, support and healing goodies for friends and family. We tried to buy healing gift boxes for friends and found none in the UK. So we just continued to make our own and more…

  • Trailblazer Interview: Claudia Olivie & Altering Your Morning Routines for Life

    How do you begin your day? And how does that change your day and your life? Claudia Olivie is a Speaker. Certified Holistic Health Practitioner + Stress Management Mentor. She believes that we’re most fulfilled when we’re showing up as the best version of ourselves every day. And Claudia has a radical message that will alter your morning routines – for life! We talk healing, auto immune illness and embracing wellness from the moment you open your eyes. Check out our interview below: And visit Claudia at: http://claudiaolivie.com/ Image courtesy of Jeffrey Deng.

  • Dear Grace Q & A: How Do I Explain That My Chronic Illness & Life Aren’t a Tragedy?

    “What is a simple way of explaining the concept of living well with chronic illness to other people? People without chronic illness seem to find it difficult to understand that I don’t view my life as an awful tragedy…and it takes a long time explaining why I don’t feel that way.” Let’s begin by considering your audience. It helps to meet people where they are because its easier for them and our results will likely be more successful too.  Consider the potential mindset of the person you are wanting to understand this. It’s harder to make ourselves clear to someone if we are focused only on what we want to…

  • What to Wear All Day Instead of Pyjamas

    I know that as ‘an entrepreneur’ I should probably give you the impression that, although I work from home, each day I get up practice yoga, curate a comfortable yet funky outfit, and do my hair and makeup before sitting down to begin my work. But that is not at all true, not even a little bit. I’m not just an entrepreneur, I’m also living with energy constraints. And I’ve been living with chronic health challenges for 13 years. Here’s the truth: many of those years were spent in pyjamas. I’ve had satin pyjamas to prevent bedsores and french linen pyjamas to keep me cool (but they just get soaked…

  • He Liked It so He Put a Mitten on It

    If you a get an email from me this week, it will probably be short, there may very well be typos, and capital letters? Forget it, that’s way beyond me at the moment. Why? Because I have a new friend/enemy – the computer mitten. You want to know the story? Here we go…Since I first became ill, I’ve had issues with my right side. It always hurt more and it didn’t feel as strong. Both my arm and leg, it was all on the right side. But when I found a new massage therapist recently, her work astounded me. After a massage I had so much more movement and less…

  • Road Trips and Self Care

    A car is, to me, an incredibly luxurious mode of transport. We can go whenever we like! It’s a private pod that can be made comfortable and it’s something that needs to be considered seriously, bearing in mind the impact journeys have on climate change. A road trip can be fabulous, and difficult too. Travelling is tiring, something that seems to be forgotten nowadays. As though if one is sitting down then one is at ease. Not so! As a child, my family always treated travelling or spending time in the cities as an exertion. One had to rest after travelling home from London by train. Linus, my husband, was…

  • Beyond Good and Bad

    I don’t know about you, but as much as I appreciate and value people I know, choose and trust offering me refinement, celebration, feedback, reflection advice and wisdom… I don’t much like people telling me what I can and can’t do. Especially as most of it turns out not to be true. I’ve turned Trail Blazer, remember? I mean if I’d listened to all the people who told me I couldn’t do something, I certainly wouldn’t be here writing to you today. And so I don’t really like categorizing my life into ‘that’s not for me’. Of course there are things I have no desire to pursue – recreational drugs,…

  • Keeping Cool When The Weather’s Hot

      It’s that time of year – summer! And, if you’re like me, the warm, dry weather is your perfect cup of tea. That said, staying healthy and cool during those long, sunny days is a challenge. The seasonal heat can be a huge energy drain, and exacerbate aches, pains and fatigue. How to keep cool has been a hot topic lately in our Trail Blazers’ café, with lots of great insights and suggestions (care to join us? Head on over here). You can also take some ideas from my tried and true tips: 10 Tips to Keep Cool When It’s Hot 1. Plan to do your most strenuous activities…

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