• Illness Etiquette: What People CAN Say…

    In many illness support groups everyone talks of all the silly things people say to those with illness and disability… :: Will you ever walk again? (Hi, I don’t believe we’ve been introduced, I’m Grace, how do you do?) :: Isn’t it funny. So funny, bodies, aren’t they? (Not wildly, no) :: I wonder when they will find a cure? (I’ve no idea, and in the mean time please don’t report to me what you read in some random health bulletin, it’s not helpful and it’s boring) :: Aren’t you brave? (No. Fighter pilots, yes. Firefighters, yes. Mahatma Ghandi, yes. Me, no) :: What did you do to yourself then? (Would you believe me if I told you…

  • Immune Suppression and Winter Loneliness

    We had the first proper frost here yesterday. The grass was crunchy underfoot (and wheelchair wheels), the air was bitingly cold. My yoga trousers did not provide enough protection and Linus dashed back into the house to grab my fleece lined leggings (yes, they exist, yes, they are awesome). There are lots of wonderful things about winter but it can be very isolating. In winter it’s easier to get lonely, especially if you have a chronic illness or need to stay at home for any reason (caring for small children/an adult, working from home, living in an isolated area, etc.). I’ve just had a viral infection, and last winter I had chest…

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