• Accessible Enjoyment: How to Create Joy Everyday (Bad Days Included)

    Disability and fun can seem incompatible. How can you have fun when you are stuck in bed all day (and not in a good way)? What ways are there to laugh and smile when you are preoccupied with pacing, worrying about benefits, dealing with all the well-intended recommendations to drink more water/eat healthily/try chia seeds and oh yes, the actual chronic illness you are living with every single day? It’s hard, I know. I really do know as I’ve lived with chronic illness for the last thirteen years. But I’ve also danced in firelight on the beach at sunset, shared my heart on stage with hundreds of people, groomed the horses in milky December light,…

  • Living Well With Fatigue

    Do you consistently have enough energy? No? You aren’t alone. And while this isn’t a bulleted, 10-point-quick-fix article full of ginseng and grandiose promises, it is one neatly packed with valuable concepts to add some pep to your step. These thoughtful approaches have helped me live well, with fatigue and chronic illness for over 10 years, while earning a degree and building two thriving businesses. Living with illness that features symptomatic fatigue often leaves me too exhausted to sit up or turn over in bed. That same exhaustion may also have me regard basic tasks with a humdrum eye, “I don’t feel up to doing that right now…maybe I’ll try later…

  • Being Type “A” With Chronic Illness: Slowing Down to Survive

    I was never one of those girls who had a racy life pre-diagnosis. Nope. It was utterly, boringly free of sex, drugs…even rock ‘n’ roll. I listened to punk, actually, ate vegetarian (then vegan) organic food, and spent my time climbing mountains, swimming, and working to rescue animals. All very worthy, so what went wrong? Some days I wake and feel pellucid, like I’m held together not with bones, but with vibrating golden wires. Transcendental! Then, there are other days when just breathing is an effort. Everything moves painfully. Slowly. When living with illnesses that include chronic fatigue, when you are literally forced to slow down, how do you manage…

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