• Ultimate List of Things to Do When Bed Bound and Bored

    I know what it’s like to be bed bound and bored. I know what it’s like to live with chronic illness. I know what it’s like to be simultaneously so tired you could collapse and so bored you could cry. Unless you’ve experienced it, it’s hard to appreciate how difficult lying in bed all day is – or it certainly seems to be hard to appreciate, judging by how many “oh, you just get to rest, I wish I could nap all day” comments I’ve heard. (Those people really need to read my article on How to Speak to People with Disabilities. Top hint: don’t compare taking a nap with…

  • What’s Self-Care When You Can’t Care for Yourself?

    When we finally found it, I felt like there was hope again. There are very few clinics set up for treating people with M.E. and Linus and I heard about a clinic in the Breacon Beacons, near where we live. It looked amazing, set amid parkland, with an on-site nutritionist, physiotherapist, occupational therapist and pain management experts. People whose job it was to help me live, to encourage my body to heal and hurt less. Quickly, where do I sign? Self Caring But then the fine print; you couldn’t go unless you were “self-caring”. I care for myself – I love myself – I really, really care about my well…

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